Kleine-Levin Syndrome

Jon was 14 when he experienced his first episode of Kleine-Levin Syndrome (KLS).


KLS is a rare and complex neurological disorder characterized by recurring periods of excessive amounts of sleep, altered behaviour, and a reduced understanding of the world. The disorder strikes adolescents primarily but can occur in younger children and adults. At the onset of an episode the patient becomes progressively drowsy and sleeps for most of the day and night (hypersomnolence), sometimes waking only to eat or go to the bathroom. Each episode lasts days, weeks or months during which time all normal daily activities stop. Individuals are not able to care for themselves or attend school and work. In between episodes, those with KLS appear to be in perfect health with no evidence of behavioural or physical dysfunction. KLS episodes may continue for 10 years or more. KLS is sometimes referred to in the media as "Sleeping Beauty" syndrome.


More on Jons story soon.....